Xuané… a Reason to Smile Part 24

xuane ...a Reason to Smile

Xuané Niewenhuis
17 August 2006 – 24 October 2014
Forever ^8^


a Reason to Smile


Theresa Botha Nieuwenhuis

People compare their pain with that of the parents’. But I have news for you. It’s totally different. Yes, they also lost someone important who meant a lot to them, but for a mother and a father it is completely different.

I lived with her every day… saw her every day, and hugged and kissed her, and now there is a place… just an empty room.

One’s routine is totally messed up… you suddenly have hours in your day you never had before, and although it sounds heavenly to be able to sleep a few hours longer, that is what catches you the most.

Your mind was always working on what should happen next and you were always busy. Now it’s just you and your thoughts… and that can sometimes be very dangerous.

One thinks about everything… what if… if only… if I had just done… You make yourself crazy. But then all those good memories of the good times and the bad come back. I know sometimes I virtually levelled myself; I did everything I could, and not even that could save her.

Xuané was an unconventional child. She did not like attention… to be the centre of attention was not an option, she was shy and reserved… but with one smile she crept into thousands of people’s hearts.

People kept on telling me she is in a better place and she would not want to change places with us, but God knows it does not leave a mommy and daddy’s heart feeling better. A better place? The best place was here… with me… in my arms… safe.

I could see her, I could hold her and comfort her, I could bathe her, and I could dress her. I could give her food and laugh and cry with her. I want to see if my child is actually in Heaven… although I have no doubt she is. She is definitely the most beautiful angel. But still, I wanted to see it; my heart would not rest otherwise.

what makes a motherEveryone dreamed of her except me. I wanted to see my child again. What makes other people so special to see her again? I am the mother! I have every right to see her. I begged and pleaded… “Please… I just want to know that she is safe and happy.”

I went to lay my head down after a very long day and I dreamed of her. I dreamed she was lying next to me like the morning I found her. I remember that I turned around and when I saw her, I grabbed her and just held on. She turned her head towards me. She had no swelling, no sign of a tumour; she was just her beautiful self. She did not say a word, she just smiled at me. Wow, that was the most beautiful smile I’ve ever seen. And then she just disappeared…

I woke up and realised my child is safe and happy. My heart was at peace for the first time in the five months since her death.
Little Fighters Cancer Trust would like to extend a huge thank you to the Niewenhuis family for allowing us to share Xuané’s story and photos, and hope that it will bring Awareness regarding Childhood Cancer to the public in general so that they can get a bit of an idea what battling Childhood Cancer is like – why the Little Fighters Cancer Trust does what it does, why creating Awareness around Childhood Cancer is so important, and enlightenment to other parents.

We will continue with Part 25 of Xuané… a Reason to Smile tomorrow…


About LFCT

This is a blog about CHILDHOOD CANCER and CHILDHOOD CANCER AWARENESS Little Fighters Cancer Trust is a non-profit organisation that offers support and aid to Children with Cancer and their families. When a child is diagnosed with cancer it affects the whole family. One of the parents, usually the mother, must give up their job to care for the child and this creates financial problems for the family. In South Africa especially the majority of these families are not well-to-do; many of them are rural. A diagnosis of cancer can wipe out any family’s finances, let alone a poor family. The costs of special medications, special diets, hospital stays, transport to and from the hospital or clinic and accommodation and food costs for the mother who spends most of the time at her child’s bedside are astronomical. These are the people and problems that fall through the cracks, and these are the people that Little Fighters Cancer Trust has pledged to help in any way possible. LFCT takes a holistic approach to assisting the Children with Cancer and their Families, with the main aim to be the preservation of individual dignity and pride. Little Fighters Cancer Trust also focuses on promotion and advocacy of National Childhood Cancer Awareness in an effort to increase awareness of Early Warning Signs of Childhood Cancer. This would result in earlier diagnosis, giving the Child with Cancer more of a chance at Treatment and Survival. See "About" for more Background info

Posted on 24 September, 2015, in Blog, Onco Parents and tagged , , , , , . Bookmark the permalink. Leave a comment.

Please help us to Raise Childhood Cancer Awareness by Commenting and Sharing

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

My Name is Chuma

a blog from a Cape Town inner city artist

The Average South African

Food // Travel // Lifestyle

You Are The Cure

Campaign for children with Leukaemia

Knitting Rays of Hope

Spreading Hope...a hat at a time.


Inspired by ordinary people doing extraordinary things

Surviving The Bubble

Jamie Hutchings, Public speaker, leukemia survivor and depression fighter


Sharing my learnings of being a mother

Art of Social Work

Kristina Sargent

fonzandcancer blogging to encourage.

Sharing my journey with you.

%d bloggers like this: