Category Archives: Onco Parents

Dedicated to Those Who Are Missing Someone Today


Christmas is not a happy time for everyone – there are many individuals for whom the Festive Season is very painful as it is the time that they miss those who are gone the most.

For parents who have lost a child, whether to cancer or anything else, this is a really, really, difficult time of the year because Christmas is about the children, after all…

Today we would like to take a moment to send out some love to all parents who have lost a child/children.

While the first Christmas is particularly poignant, each Christmas without your child will bring its own challenges, and each parent has to grieve in his or her own way.

There is not much that anyone can say that will take away your pain, but we here at the Little Fighters Cancer Trust would just like to let you know that we are holding you close in our hearts today and are sending you as much Love & Peace as your heart can hold.

 

Sending you Angel Blessings
( `\( ). .•°*”˜
¸.•´¯`•...✫ (⁀‵⁀,)
..` /
\_/¯…………`•.¸¸. . . . . . . ´
.(_/’/……………………`•.¸
`•.
…\ \ …
…./ /…
Sprinkling Love, Light & Healing
….\/ ….
Peace, Love & Harmony Your Way

 

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AR App Helping Child Cancer Patients Cope with Anxiety


picture of characters in appThe Paediatric Brain Tumor Foundation’s app is bringing imaginary friends to life in hospitals and cancer treatment centers.

A three-eared rabbit stands on Bridgette Czarnecki’s hospital bed. He playfully wiggles his ear and adjusts his yellow bow tie.

You’re stronger than you know,” he tells the 8-year-old. “I wish I was that strong.”

A flying pink-haired cow swoops in, pirouetting in the air. “Believe in yourself,” she says in a gentle voice. “I sure do.”

Nearby a friendly green monster smiles and waves. “Never give up, kid. Never give up.”

They’re all part of the Imaginary Friend Society, and they are exactly as billed: a figment of the imagination. For Czarnecki, who was diagnosed with a brain tumor in November 2017, they were a welcome distraction from the stress and anxiety of MRIs and chemotherapy while she was treated at the Children’s Hospital Los Angeles through February.

Czarnecki summoned the characters from a touchscreen above her hospital bed and the Imaginary Friend Society app developed by the Pediatric Brain Tumor Foundation. The app uses augmented reality, which overlays digital images on top of what you’re seeing in the real world.

It makes me feel happy,” Czarnecki tells me.

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kick.kick.breathe


Today we would like to share a blog-post we found on site we follow called Unravel Pediatric Cancer. This organisation is run by “onco parents” and we know that our own “onco parents” will relate to this post in particular.

The post highlights the emotional rollercoaster that is Childhood Cancer; the emotions felt by siblings of children with cancer, as well as the emotions of the parent(s).

You ever been in the water.. and you start to get tired and your stroke gets slower and you sink a little deeper .. or like when you are in the current and you stop fighting it and let it pull you …

That’s what grief is like I think..

Sometimes its too strong and you simply are unable to resist its pull on you.. Especially in the beginning.. because really you are only just learning to swim. But then you learn.. you have to right? So then you feel it happening and you kick against it.. Just a few strong kicks will bring you back to the surface and you can gulp in air.

It happened to me today.

pull. kick. kick. breathe

.. but first I’ll rewind..

Two days ago I took my 4 younger kids with me to go see their sister. .. the living .. growing.. visible part of her. They.. especially our middle two have been asking questions over the last few months.. Hard questions.. The same ones over and over again. ..

mama why did she get cancer? but mama did it hurt her?

Actually the hardest ones aren’t the questions but the statements.

mama when I turn 6 and get my brain tumor. Mama when I die young..

Read the rest of this post HERE

 

Help Needed for Little Fighter Kenzo🤴


Hi Folks – our Little Fighter Kenzo and his family really need your help!

As those of you who follow our Facebook Page know, Kenzo has been in and out of hospital again over the past few months due to a relapse, and he was recently rushed back to hospital after a particularly bad reaction to the chemotherapy he was receiving.

Due to his allergic reaction to the chemo he was receiving, an alternate chemo needed to be sourced, and yesterday his mother contacted me in tears – the replacement chemo is going to cost R61 605-50 for FIVE vials, of which Discovery Health will only pay 50%!!

PLEASE do whatever you can to help his parents defray these costs  (see link further down), which are only a portion of what Kenzo’s treatment is costing them – NO ONCO PARENT should go through this over and above dealing with their child being deathly ill with the bastard cancer!!

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Celebrating the Life of Gracie Rae Philbin ^Forever 5^


Gracie Rae Philbin is a name that is well-known not only to those of us at the Little Fighters Cancer Trust, to Paedspal, to her family, to her fellow schoolmates – it is a name that is known across the Globe, and it is a name that will always inspire those of us who knew or just knew of the wonderful young lady to whom that name belonged…

Gracie was a beautiful young girl of around three-and-a-half years of age with the most piercing blue eyes, long blonde hair and mischievous smile when she suddenly became ill and after two fruitless visits the family doctor, was diagnosed with Stage 4 Neuroblastoma, which is a type of cancer that forms in certain types of nerve tissue, at the Red Cross Children’s Hospital.

Unbeknownst to this family, this diagnosis was about to change all of their lives drastically…

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The Mourner’s Bill of Rights


Losing a child is the most painful experience that any parent can be asked to go through, especially when it is a young child that they have had to watch go through the devastating, frightening, physically and emotionally crippling battle against cancer.

Losing a child is like losing one’s heart and then being expected to carry on with life as though everything is still the same – and it isn’t.

People expect you to act and behave in a specific manner, and they have no right; they mumble inane well-meaning but awkward, insensitive phrases like “He’s in a better place,” “Everything happens for a reason,” or “You’re lucky to have other children,” and “Time will heal all,” or “You must get on with your life now.”

In our second article in this Bereaved Parents Awareness Month we would like to once again extend our heartfelt sympathies to all parents who have lost a child/children and remind you that NOBODY has the right to tell you how to grieve, how long to grieve, or anything else about YOUR grief!

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Losing a Child is Painful


crying is a releaseThe loss of a child is probably the most painful experience any parent can endure.

July is International Bereaved Parents Awareness Month and during this time the Little Fighters Cancer Trust would like to remember and reach out to all those parents who have lost their children to Cancer.

The loss of a child is the most inconsolable of losses; It violates the natural order of things. Here at LFCT we unfortunately see too many parents face this devastating loss, and it breaks our hearts every time we do, but even we cannot really say that we know what they are feeling.

International Bereaved Parents Awareness Month is a time to reach out to bereaved parents and their families by giving them someone who will listen to them without trying to give them advice as to how to feel or act; someone to just “be there” for them, to give them a shoulder to cry on or a hug if they need it, or to just let them talk…

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Alternative Eating for Better Health


While the following article refers more to lifestyle diseases such as HIV Aids, diabetes, hypertension and obesity, eating well and ensuring that you and your Child with Cancer eat sufficient fresh, whole-foods and staying away from processed food as much as possible is critical for your good health.

It is important that we all learn to change our bad eating habits to include healthy eating solutions inspired by traditional southern African foods which contain more Vitamin B, Vitamin C, Antioxidants, Fibre, Calcium, Carbohydrates and Protein than what most of us are eating on a daily basis.

Please read this article carefully and take the important information contained therein to heart, but also remember to discuss any changes in eating habits with your child’s oncologist before embarking thereon.

Remember, this is not meant to take the place of any current medication, but as an additional help to build up the immune system.

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Child Cancer Diagnosis – What I Wish I Knew


What do you do when you receive the shocking and unwelcome news that your child has cancer? What do you need? How do you handle it?

What do you do or say when the child of a friend has been diagnosed with cancer? How do you support them best?

What do you say and what should you never, never, EVER say to the parent of a child with cancer?

It is difficult to know what to say even to an adult who has been diagnosed with cancer, let alone to a child or the parent of a child with cancer…

The following was written by the mother of a child with cancer to let everyone know how she felt and what is cool and what is not cool to say to someone whose child has cancer… we hope that it will be of some help to those who have just heard that a friend or family member’s child has just been diagnosed with cancer and the family is about to face the battle of their lives….

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👦 Update On Little Fighter KENZO 👦


Little Fighter Kenzo Phillips was diagnosed with Acute Lymphoblastic Leukaemia (ALL) in February 2016, at a mere 8 months of age.

Kenzo has gone through much in his short lifespan, including harsh chemotherapy treatments, and has seen more hospitals and doctors than any child should…

Earlier this month LFCT celebrated with Kenzo and his family at the news that, after his annual 4 weekly check-up – a full month after his final chemo treatment – His blood counts were perfect and the doctors were very happy – his Bone Marrow Biopsy also came back CLEAR!!!!!

Cancer is fickle however, and a mere FIVE DAYS later Kenzo was rushed to hospital with a terrible headache & vomiting.

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