Category Archives: Advice & Tips
Christmas is not a happy time for everyone – there are many individuals for whom the Festive Season is very painful as it is the time that they miss those who are gone the most.
For parents who have lost a child, whether to cancer or anything else, this is a really, really, difficult time of the year because Christmas is about the children, after all…
Today we would like to take a moment to send out some love to all parents who have lost a child/children.
While the first Christmas is particularly poignant, each Christmas without your child will bring its own challenges, and each parent has to grieve in his or her own way.
There is not much that anyone can say that will take away your pain, but we here at the Little Fighters Cancer Trust would just like to let you know that we are holding you close in our hearts today and are sending you as much Love & Peace as your heart can hold.
✫ Sending you Angel Blessings ✫
( `\( ). .•°*”˜ ☆¸.•´¯`•.☆..✫ (⁀‵⁀,)
..` /♪\_/¯…………`•.¸¸. . . . . . .✫ ⋎´
…\ \ …
…./ /… ✫ Sprinkling Love, Light & Healing ✫
….\/ …. ✫ Peace, Love & Harmony Your Way ✫
The Paediatric Brain Tumor Foundation’s app is bringing imaginary friends to life in hospitals and cancer treatment centers.
A three-eared rabbit stands on Bridgette Czarnecki’s hospital bed. He playfully wiggles his ear and adjusts his yellow bow tie.
“You’re stronger than you know,” he tells the 8-year-old. “I wish I was that strong.”
A flying pink-haired cow swoops in, pirouetting in the air. “Believe in yourself,” she says in a gentle voice. “I sure do.”
Nearby a friendly green monster smiles and waves. “Never give up, kid. Never give up.”
They’re all part of the Imaginary Friend Society, and they are exactly as billed: a figment of the imagination. For Czarnecki, who was diagnosed with a brain tumor in November 2017, they were a welcome distraction from the stress and anxiety of MRIs and chemotherapy while she was treated at the Children’s Hospital Los Angeles through February.
Czarnecki summoned the characters from a touchscreen above her hospital bed and the Imaginary Friend Society app developed by the Pediatric Brain Tumor Foundation. The app uses augmented reality, which overlays digital images on top of what you’re seeing in the real world.
“It makes me feel happy,” Czarnecki tells me.
Losing a child is the most painful experience that any parent can be asked to go through, especially when it is a young child that they have had to watch go through the devastating, frightening, physically and emotionally crippling battle against cancer.
Losing a child is like losing one’s heart and then being expected to carry on with life as though everything is still the same – and it isn’t.
People expect you to act and behave in a specific manner, and they have no right; they mumble inane well-meaning but awkward, insensitive phrases like “He’s in a better place,” “Everything happens for a reason,” or “You’re lucky to have other children,” and “Time will heal all,” or “You must get on with your life now.”
In our second article in this Bereaved Parents Awareness Month we would like to once again extend our heartfelt sympathies to all parents who have lost a child/children and remind you that NOBODY has the right to tell you how to grieve, how long to grieve, or anything else about YOUR grief!
The loss of a child is probably the most painful experience any parent can endure.
July is International Bereaved Parents Awareness Month and during this time the Little Fighters Cancer Trust would like to remember and reach out to all those parents who have lost their children to Cancer.
The loss of a child is the most inconsolable of losses; It violates the natural order of things. Here at LFCT we unfortunately see too many parents face this devastating loss, and it breaks our hearts every time we do, but even we cannot really say that we know what they are feeling.
International Bereaved Parents Awareness Month is a time to reach out to bereaved parents and their families by giving them someone who will listen to them without trying to give them advice as to how to feel or act; someone to just “be there” for them, to give them a shoulder to cry on or a hug if they need it, or to just let them talk…
While the following article refers more to lifestyle diseases such as HIV Aids, diabetes, hypertension and obesity, eating well and ensuring that you and your Child with Cancer eat sufficient fresh, whole-foods and staying away from processed food as much as possible is critical for your good health.
It is important that we all learn to change our bad eating habits to include healthy eating solutions inspired by traditional southern African foods which contain more Vitamin B, Vitamin C, Antioxidants, Fibre, Calcium, Carbohydrates and Protein than what most of us are eating on a daily basis.
Please read this article carefully and take the important information contained therein to heart, but also remember to discuss any changes in eating habits with your child’s oncologist before embarking thereon.
Remember, this is not meant to take the place of any current medication, but as an additional help to build up the immune system.
What do you do when you receive the shocking and unwelcome news that your child has cancer? What do you need? How do you handle it?
What do you do or say when the child of a friend has been diagnosed with cancer? How do you support them best?
What do you say and what should you never, never, EVER say to the parent of a child with cancer?
It is difficult to know what to say even to an adult who has been diagnosed with cancer, let alone to a child or the parent of a child with cancer…
The following was written by the mother of a child with cancer to let everyone know how she felt and what is cool and what is not cool to say to someone whose child has cancer… we hope that it will be of some help to those who have just heard that a friend or family member’s child has just been diagnosed with cancer and the family is about to face the battle of their lives….
The immune system is the body’s defense against infectious organisms and other invaders.
Through a series of steps called the immune response, the immune system attacks organisms and substances that invade body systems and cause disease.
The immune system is made up of a network of cells, tissues, and organs that work together to protect the body.
One of the important cells involved are white blood cells, also called leukocytes, which come in two basic types that combine to seek out and destroy disease-causing organisms or substances.
Leukocytes are produced or stored in many locations in the body, including the thymus, spleen, and bone marrow.
For this reason, they’re called the lymphoid organs. There are also clumps of lymphoid tissue throughout the body, primarily as lymph nodes, that house the leukocytes.
Some children who have been born without a limb or who have had a limb amputated feel pain in the non-existent body part. This is often called phantom pain. This pain is caused by damaged nerves from the amputated limb that continue to send signals to the brain. These signals are interpreted as pain.
While the pain the child experiences is not caused by an actual injury, the sensations are very real and can include burning or shooting pain, achiness or cramping, or pins-and-needles feelings.
The sensations of phantom pain are very real. Following an amputation, there are still nerves present in the remaining portion of the limb and these nerves send pain signals to the brain and tell the brain that the limb is still present.
Phantom limb pain is a well-recognised pain syndrome which can resolve on its own with time, but because pain can interfere with your child’s quality of life and decrease physical function, there are various treatments available.
Hearing the doctor say the words “your child has cancer” will never be easy to hear.
Parents go through several stages throughout this process much like the five stages of grief; denial, anger, bargaining, depression and acceptance.
However, unlike losing a loved one suddenly, cancer can go on for several years with many highs and lows.
This results in stages varying in timing, duration, and cycles.
By acknowledging and understanding the possible stages you can better progress through the phases parents’ may go through.
Ensuring that your Child with Cancer gets sufficient nutrition, which is necessary to improve their immune system so that they can fight the cancer, is not always easy, especially when you are a single parent, are dealing with the side-effects of chemotherapy or radiation treatment, or have other children to look after as well.
The following quick meal and snack suggestions can really be of big help if your Child with Cancer is missing meals while having treatment or waiting for appointments.
Some of these meals/snacks may not seem like the most healthy of choices, but if your Child with Cancer has a poor appetite, it is important to focus on high-protein and high-energy foods and fluids.