Following on yesterday’s post Herbal Essential Oils Proven to Kill Cancer Cells and last week’s post, High Dose Vitamin C to Improve Cancer Treatment Outcomes Passes Human Safety Trial, today we are sharing some great smoothie recipes using citrus essential oils.
Smoothies are always good for Children with Cancer as it is one way that they can get the required nutrition, especially when suffering from sore mouths or are struggling to swallow as a result of their cancer treatments.
Many essential oils can also be used in recipes in place of the fruit, seed, or plant the essential oil is derived from, and citrus essential oils such as lemon, orange, lime, and grapefruit can be delicious substitutes for the juice and/or zest called for in a recipe.
Having essential oils on hand is always a good idea as they contain loads of goodness in a small bottle and one only needs to use a tiny bit at a time – 1 drop of citrus essential oil can generally substitute for 1 teaspoon of zest or 2 tablespoons of juice. If your recipe calls for the zest of the entire fruit, this works out to between 7-15 drops of its essential oil counterpart. Read the rest of this entry
Once again it is foodie Friday, and we are bringing you some great, nutritious recipes for your Child with Cancer that the whole family can enjoy.
It is vital that Children with Cancer, including Children with Brain Cancer, eat well-balanced, nutritional meals and snacks in order to maintain their weight, rebuild any tissue lost in treatment, and strengthen their immune system and power it to fight against the brain cancer.
The occurrence of malnutrition in children with childhood tumours is multifactorial and develops during therapy for cancer in 40-80% of children. Malnutrition is more commonly seen in patients with advanced Neuroblastoma, Wilms Tumour, Ewing Sarcoma and advanced lymphomas.
Malnutrition is usually more severe with aggressive tumours in the later stages of malignancy. Children who have a poor nutritional status have lower survival rates compared to those with a good nutritional status.
Nutrition is very important for Children with Cancer, because the presence of the tumour as well as the treatments that they undergo play havoc with their immune systems as well as various other systems in their little bodies.
A malignant tumour leads to changes in a child’s metabolism; their system is unable to regulate the expenditure of energy according to the reduced energy intake, leading to an ineffective use of nutrients and contributing to the development of malnutrition. Malnutrition can lead to lower survival rates in children with brain cancer.
Children with cancer, especially those with solid tumours, have reduced body protein stores due to whole body protein breakdown. This may occur as a result of the cancer itself, the treatment they are undergoing for their tumour, or complications of the disease. Read the rest of this entry
Brain tumours can be either primary (develop in the brain) or secondary (cancer from another part of the body spreads to the brain).
A primary brain tumour occurs when abnormal cells form in the tissues of the brain. Brain tumours are the most common type of tumour that develops in children, and they can affect children of any age.
The brain and spinal cord are closely linked and together they form the Central Nervous System (CNS). The spinal cord connects the brain with nerves in virtually every part of the human body. The brain controls many vital bodily functions.
More than 60% of brain tumours in children are located in the posterior fossa (the back compartment of the brain). The posterior fossa includes the cerebellum, the brainstem, and the fourth ventricle. Tumours in this area include:
- Medulloblastomas(also called Primitive Neuroectodermal Tumours, Or Pnets);
- Cerebellar Astrocytomas;
- Brainstem Gliomas; and
Brain tumours result in more deaths of children than any other disease, including other cancers, and the five-year survival rate is under 20%, which is extremely low seeing that the survival rate for other childhood cancers can be up to 80% these days.
There are more than 120 different types of tumour, making brain tumours a notoriously difficult disease to diagnose. Unfortunately, the brain is still one area of the human body that has not been conquered, and this includes brain cancer.
It is a wonder then that brain cancer treatments have not really changed in the last 35 years and brain tumour research is woefully under-funded.
During this year alone, in excess of 7 000 children will be diagnosed with a brain tumour. Brain and central nervous system tumours are the most common cancers among children and death from brain tumour has overtaken death from leukaemia as the leading cause of death in children.
Childhood brain cancer is not the same as adult brain cancer; a child’s brain is still developing, so brain tumours in children generally appear in different areas of the brain than adult tumours and they also act differently to adult tumours. Treatment options for Childhood Brain Cancer vary and are generally influenced by the age of the child.
May is Brain Cancer Awareness Month! During the month of May, millions of individuals across the Globe “Go Grey for May” in support of Loved Ones who are or have suffered from brain cancer. Grey is the colour of the Brain Cancer Awareness Ribbon.
Show YOUR support for all our Little Fighters battling Brain Cancer by turning your Facebook pages GREY during the month of May (you will find some covers and profile pics you are welcome to use on our FB Page.)
Few challenges can compare to dealing with the news that a child in your family has a brain tumour. The emotional burden can seem beyond anyone’s ability to cope, and there are very difficult decisions involved in coming to terms with the diagnosis.
Brain cancer survival rates are low and have hardly changed for 30 years, despite significant increases in survival for other cancers. Treatment is challenging because it affects our most vital organ. Brain cancer costs more per person than any other cancer, yet only receives a small fraction of government cancer research funding.
Relative five-year survival for brain cancer has hardly changed for 30 years, increasing less than 2% between the periods of 1984-1988 and 2009-2013. Only two in ten people diagnosed with brain cancer will survive for at least five years. Between 1982 and 2014, brain cancer incidence and mortality trends showed little change. Read the rest of this entry
Steroids occur naturally within our bodies, but can also be made in the laboratory for medical purposes. They help reduce inflammation and control different functions in our bodies such as the immune system or the way the body uses food. One of their key functions is to reduce inflammation/swelling and ease associated symptoms, such as headaches.
When your child has a tumour in their brain it is not only the tumour itself that causes some of the symptoms they may have, but also the swelling surrounding the tumour. This swelling puts pressure on surrounding tissues making the effects of the tumour wider reaching. This pressure can cause symptoms such as headaches, sickness and seizures (fits).
To help reduce the swelling, Children with Cancer may be prescribed steroids such as Prednisone or Dexamethasone as part of their treatment. As steroids are fast-acting drugs this could mean that some of the effects caused by the tumour reduce quite quickly. This does not mean, however, that the size of tumour itself has been reduced.
In an effort to help thousands of children who undergo cancer treatment each year, U.S. Senators Jack Reed (D-RI) and Shelley Moore Capito (R-WV) introduced the Childhood Cancer STAR (Survivorship, Treatment, Access and Research) Act. This bipartisan legislation will advance paediatric cancer research and child-focused cancer treatments, while also improving childhood cancer surveillance, and providing resources for survivors and those impacted by childhood cancer.
“Too many young people’s lives have been cut short by cancer. These kids and their families who’ve battled this disease inspire us to take action. The Childhood Cancer STAR Act will help young cancer patients and their families get access to potentially life-saving treatments, support survivors, and move us another step closer toward our goal of ending pediatric cancer,” said Senator Reed.
“This bipartisan legislation will continue the advances in research, prevention and care for our loved ones and families impacted by childhood cancer,” said Senator Capito. “The Childhood Cancer STAR Act gives parents and patients access to the information they need to make vital decisions about treatment and care post-treatment. This legislation will also give those who understand the unique needs of childhood cancer patients a seat at the table when decisions about cancer care are taking place.”
The death of a child is an event no parent can ever truly move beyond. Though grief is a lifelong process, for some a personal tragedy such as this can be a springboard to launch an organisation focused on bringing attention to an important cause.
That was the case for Jill and Mazen Kamen, who officially launched the Kamen Brain Tumor Foundation after losing their 19-year-old son in April to brain cancer.
In 2009 he had been diagnosed with a type of rapidly growing brain tumour called a high-grade astrocytoma that, despite aggressive treatment, eventually evolved into a glioblastoma — the highly malignant brain tumor that also took the lives of Vice President Joe Biden’s son, Beau, in 2015 and former Sen. Ted Kennedy in 2009.
“The first phase is shock when your child is diagnosed,” said Mazen. “You can’t believe it. You start questioning the why, the where. It’s like someone has hit you with a Mack truck. You have to go through that. But you also have to regroup yourself very quickly, because now you have a long, tedious road ahead. And you really have to do your homework very quickly and efficiently, if you can, to face this.”
Today I was doing some research online as per usual, and, as so often happens, came across a very relevant video about a young boy with Childhood Cancer and a store manager who made a world of a difference just by caring…
It is these small Acts of Kindness that total strangers do that make all the difference…
…to someone who may not have that much to look forward to other than pain…
… or someone who is lonely and just needs someone to show that others do care about them…
… in this case it is a Child with Cancer, and strangers who just felt that they wanted to do something to help.
It is the story of a Manager who did what was within his power to do to help. Neither the Associate nor the Manager had the slightest clue just how much this gift meant to the recipient.
According to a recent article, MEK Inhibitors Reverse Growth of Embryonal Brain Tumors Derived from Oligoneural Precursor Cells, in the journal Cell Reports, researchers at Huntsman Cancer Institute (HCI) at the University of Utah have identified an existing group of drugs that appear to reduce or eliminate a particular subgroup of childhood brain cancers while sparing normal brain tissue.
Childhood Brain Cancer affects thousands of children globally every year, and it kills more children than any other cancer. Malignant brain tumours grow rapidly and are likely to spread into other areas of the brain very quickly. Although brain tumours in children are the second most common form of childhood cancer, it is still unknown what the cause of most childhood brain cancers is.
The research was conducted using a new zebrafish animal model system developed by the researchers, which closely resembles an aggressive subtype of paediatric brain tumours.
In precision medicine era legacy gifts of patient brain tissue reveal disease mechanisms and new therapeutic approaches.
Sandra Smith, a pastor’s wife and mother of three in DeWitt, Mich. and her son were both diagnosed with cancer during the same week. She with an aggressive form of breast cancer and her son, six-year-old Andrew, with Diffuse Intrinsic Pontine Glioma (DIPG), a fatal childhood brain cancer that typically strikes between the ages of 4-10 and kills most within a year of diagnosis.
In DIPG, the malignant cells entwine with normal brain tissue in a region that controls critical functions such as breathing and heart rate, making it impossible for a surgeon to remove the tumour. Radiation therapy has been proven to be the only treatment that helps, and then only to extend life by a few short months. Andrew outlived the “typical” DIPG patient by surviving just over two years after his diagnosis, passing away at the end of 2009.
DIPG accounts for about 10% of childhood brain and spinal cord tumours. It is the second-most common paediatric brain tumour and the leading cause of cancer death in children. Treatment options and survival rate for DIPG have not changed in 40 years.
Gabriel Marshall, 8, is like any other kid. He loves to laugh, play outside, and sometimes pick on his younger sister. It’s times like those Gabriel cherishes.
“I feel like a free kid. I feel like a normal person,” said Gabriel Marshall.
The soon-to-be third grader has been battling brain cancer since March of 2015.
“I couldn’t believe it. I was shocked.. you know how could this happen?” asks Gabriel’s mom, Bethany Schultz. “He has always been so healthy, so active and then they turn around and rip my heart out.”
“At the moment when we found out about it, it felt like somebody had ripped my stomach out of my body,” said Gabriel’s dad Josh Marshall.
September is International Childhood Cancer Awareness Month and once again the Little Fighters Cancer Trust is hard at work sharing everything we can regarding Childhood Cancer and trying to raise Childhood Cancer Awareness by sharing information and Personal Stories with you.
Today we are once again sharing the story of Little Heinrich van Straaten (Heini). We have shared his story before, but we feel that we need to share it again as this Little Fighter is still fighting every day of his life as a result of brain cancer.
The Little Fighters Cancer Trust would like to sincerely thank all our Onco Parents that have shared with us in the hope that their stories can help other parents who have children that are ill but are not sure what the problem is, and to raise Childhood Cancer Awareness so that earlier diagnosis can be done.
We will continue to publish more poems and stories by Onco Parents throughout this month as we work hard to bring Childhood Cancer to the fore and spread Childhood Cancer Awareness – all in the effort to inform and educate other parents to the ravages of Childhood Cancer and to remind everyone that
The Best Defence against Childhood Cancer is Awareness and Early Diagnosis
Most Brain Cancers are treated with Radiation Therapy, but the cancer cells can repair themselves in order to live on.
Researchers at Sidney’s Kimmel Cancer Center recently tested a strategy that combines radiotherapy with a drug that shuts down the ability of tumours to mend themselves.
According to the research, published in the Journal of Neuro-Oncology, results of the study are such that a more comprehensive, phase 2 clinical trial should be conducted to test the combination therapy for aggressive, recurrent brain cancer.
“We saw synergy between radiotherapy and the agent, panobinostat. Our findings suggest panobinostat makes radiotherapy much more effective,” says the study’s senior author, Yaacov R. Lawrence, M.D., of the Department of Radiation Oncology at Thomas Jefferson University’s Sidney Kimmel Medical College.
All 12 patients tested in the study had high-grade gliomas that had recurred after initial radiotherapy. Eight patients had recurrent glioblastoma, and four had recurrent anaplastic astrocytoma.