Blog Archives

July is International Sarcoma Awareness Month!


The month of July is designated International Sarcoma Awareness Month.

Sarcomas are rare cancers that develop in the muscle, bone, nerves, cartilage, tendons, blood vessels and the fatty and fibrous tissues.

They can affect almost any part of the body, on the inside or the outside.

There are three main types of sarcoma: soft tissue sarcoma, bone sarcoma and gastrointestinal stromal tumours (GIST). There are around 100 different sub-types of sarcoma

Sarcomas make up 15% of all childhood cancers (0-14 years) and 11% of all cancer diagnoses in teenagers and young people (15-24 years).

Read the rest of this entry

Advertisements

Feedspot Influential Blog Rank: #4


The Little Fighters Cancer Trust is proud to announce that our Blog has once again – for the 3rd year running – been ranked among the Top Childhood Cancer Blogs on the internet for 2018!

This blog was started in June 2014, and since then we have been hard at work trying to share the most relevant, most up to date information regarding Childhood Cancer as well as some of the Struggles and the Triumphs & Tragedies that accompany Childhood Cancer, and will continue to do so as often as possible for as long as possible.

We moved up from #57 in 2016 to #5 in 2017, and in 2018 we have moved up to 

Feedspot Influential Blog Rank: #4

#ChildhoodCancer   #LittleFighters   #LFCT   #CancerSUCKS #LittleFightersCancerTrust   #HelpingHands   #LFCTCares

 

Thanks a million to all our Supporters and Followers!

 

Can Dandelion Root/Tea Really Cure Cancer in 2 Days?


Folks there are lots of articles being shared on the internet saying that Dandelion Tea is a miracle cure that can cure cancer in 2 days….

One of our Facebook Supporters inboxed me the link to one of these articles, and as always, I thanked them and said that I would look into it.

Each and every article we post here is thoroughly researched on various reputable websites so that we can be sure that the information that we are disseminating here is legit and also applies to Childhood Cancer, which is VERY different to Adult Cancer.

As far as the claim that Dandelion Tea is a miracle cure that can cure cancer in 2 days goes, according to my research – There is no medical proof!!!

Read the rest of this entry

Brain Cancer


Brain tumours can be either primary (develop in the brain) or secondary (cancer from another part of the body spreads to the brain).

A primary brain tumour occurs when abnormal cells form in the tissues of the brain.

Brain tumours are the most common type of tumour that develops in children, and they can affect children of any age.

The brain and spinal cord are closely linked and together they form the Central Nervous System (CNS). The spinal cord connects the brain with nerves in virtually every part of the human body. The brain controls many vital bodily functions.

The brain consists of three major parts:

  • The cerebrum is the largest part of the brain. It sits at the top of the head and controls learning, emotions, thinking, speech, reading, writing, and voluntary movement.
  • The cerebellum is the lower back part of the brain and lies near the middle of the back of the head. It controls balance, movement and posture
  • The brain stem is the lowest part of the brain and is situated just above the back of the neck. It connects the brain to the spinal cord and controls heart rate, breathing, and all the muscles you use to walk, talk, hear, see, and eat

Malignant brain tumours grow rapidly and are likely to spread into other areas of the brain very quickly. When a tumour grows into or creates pressure on part of the brain it may cause that part of the brain to stop functioning the way it should.

Read the rest of this entry

More Hope for Children with Leukaemia


The average survival rate for Acute Lymphoblastic Leukaemia (ALL), the most common type of children’s cancer, has gone from under 20% to 85%  – unfortunately this is not the case in South Africa though 😥

Cutting-edge treatments are constantly being developed for even the toughest cases, but once again, these treatments are not available in South Africa!

Children’s cancers are unique, but the lessons learned from the extraordinary success of consecutive clinical trials have paved the way for advances in cancer treatment in general. New scientific breakthroughs are happening extremely quickly in medicine these days, far quicker in actual fact than the ability to develop and fund new treatments. Unfortunately this also means wrestling with uncomfortable questions of fairness in deciding priorities — who will be treated first?

One of the most important developments in Childhood Cancer is the ability to tailor treatment — to figure out who needs powerful doses of chemotherapy and who could do with less. Lighter treatment causes less long-term damage to the rest of the developing body — very important for children who have their whole lives in front of them. In some subgroups of patients with ALL, we’re getting better-than-90% survival rates using minimal therapy. This will allow children to recover more fully, without long-term side-effects and with a normal life expectancy.

Right now, there are two groups of kids with ALL at high risk of dying: those with treatment-resistant disease, and those whose cancer recurs either more than once or after receiving a stem-cell transplant.

 

 

Even for these toughest cases though, there is now a promising new treatment: a type of immunotherapy calledCAR-T that harnesses the body’s own immune system to destroy cancer cells. Doctors remove immune cells, called T cells, from the child’s blood and reprogram them to find and destroy the leukaemia cells by changing the DNA that controls the immune response. Those cells are put back into the child’s bloodstream, where they multiply then track down and kill the cancer cells. (The first Child with Cancer to receive this experimental treatment, a girl who had been destined to die, is alive and well 12 years later.)

As doctors and scientists home in on the toughest cases, treatments will become more “customised” and more expensive. It currently costs in excess of $2 million to save the life of a child sent to the U.S. for the new CAR-T therapy. If this treatment was available in other countries, it would cost far less, and would be far less disruptive to both the Child with Cancer as well as the rest of the family who generally have to move to the US for at least the duration of the treatment.

It is hoped that the role of CAR-T treatment can be expanded to other types of cancer next — for example, brain tumours, which are the second-most-common group of childhood cancers.

The problem is that many medical aids will not cover such exorbitant costs. Also, there’s never going to be enough money to fully fund every emerging treatment and to try “everything” in every case, so pursuing one type of costly treatment means less money for another.

Many medical ethicists, governments, health-care professionals and ultimately everyone in society is grappling with the question of “If it costs $2 million for that treatment for one child but there are far fewer children with leukaemia than there are adults with breast and prostate cancer, and that amount would treat far more adults, What is a fair expense?

Ultimately, every advance we make in treating any type of cancer could help us to develop treatments for others, and hopefully we will see survival rates continue to rise, allowing the bedside role more and more to encompass hope as well as compassion.

 

 

Donate New Footwear & Winter Clothing for Kids with Cancer


We need YOUR help!!

This year the Little Fighters Cancer Trust is combining our Barefoot for a Day and Snug as a Bug Projects into one big project and we need YOU to donate NEW winter footwear (shoes, takkies, boots, slippers etc) and NEW winter clothing for our Little Fighters.

Your donations will be sorted and packed at our HQ and sent out to our Representatives in the various provinces, who then distribute the shoes and clothing to Children with Cancer in the Pediatric Oncology Hospital Wards and Oncology Clinics around the country.

Our Little Fighters have greatly impaired immune systems due to the cancer as well as the ravages of the Chemotherapy and Radiation Treatments, so we can only accept NEW shoes and NEW clothing for these projects. (We do, however, accept donations of second-hand clothing and other goodies throughout the year for sale in our Pre-Loved Goods Charity Shoppe.)

All donations need to be in Paarl by the first week in March to ensure that they can be sorted and packed and sent to the various regions for delivery mid- to -end March.

If necessary we can organise for our wonderful transport company, Kargo, to collect sizable donations – with no charge to you at all.

Read the rest of this entry

Barefoot & Snug Challenge to ALL South African Schools


The Little Fighters Cancer Trust is combining our Barefoot for a Day and Snug as a Bug Projects into one big project this year, and we put out the call for donations last week. (Read further down about the response we got and the reason for this Challenge!)

In both of the projects we ask for donations from the public, which are sorted and packed at our HQ and sent out to our Representative in the various provinces, who then distribute the shoes and clothing to Children with Cancer in the Pediatric Oncology Hospital Wards and Oncology Clinics around the country.

Our Little Fighters have greatly impaired immune systems due to the cancer as well as the ravages of the Chemotherapy and Radiation Treatments, so we can only accept NEW shoes and NEW clothing for these projects. (We do, however, accept donations of second-hand clothing and other goodies throughout the year for sale in our Pre-Loved Goods Charity Shoppe.)

Read the rest of this entry

Call To Promote Global Childhood Cancer Awareness


Sheikha Jawaher Bint Mohammed Al Qasimi, Founder and Royal Patron of the Friends of Cancer Patients, FoCP, and wife of His Highness the Ruler of Sharjah, has called for combined global efforts to promote worldwide awareness of paediatric cancer and provide access to treatment for children suffering from cancer, particularly in low and middle-income countries.

The call was made on the sidelines of the launch of the Access to Essential Medicines for Children with Cancer, Sharjah PORTAGE, Forum, held earlier this month, under the theme ‘Challenges and Pursuit of Innovative Solutions’, with the participation of 60 senior officials of international health organisations, medical and health experts, and heads of private and public sector entities from around the world.

By playing host to the childhood cancer forum in line with the vision and directives of H.H. Dr. Sheikh Sultan bin Mohammed Al Qasimi, Supreme Council Member and Ruler of Sharjah, the emirate is taking a new step in its commitment to combat cancer. Sharjah is pushing even further joint initiatives and collaboration with various international agencies as part of a worldwide campaign to promote awareness about the importance of early detection of cancer and combining efforts to save the lives of thousands of children with cancer around in the world, many of whom have died due to lack of resources,” said Sheikha Jawaher, who is also the International Ambassador for the World Cancer Declaration of the Union for International Cancer Control, UICC.

Read the rest of this entry

Don’t Cry at my Grave – Prevent My Landing up There!!


I have just finished reading a few articles on a young cancer patient who got his angel wings on New Year’s Day, and I am ANGRY!!!

I am ANGRY that young Junaid Arendse from Mitchells Plain, who was diagnosed with Stage 4 Neuroblastoma in 2014 passed away at the tender young age of 8, even though he outlived his doctor’s predictions – in  June 2015 the doctors gave him 3 months to live.

I am ANGRY that one of our Little Fighters passed away on 12 January before we even had time to register him and offer any help.

I am ANGRY that two more families have to deal with the loss of a young child to a disease that is devastating in so many ways.

I am ANGRY that in other countries the childhood cancer survival rate is between 65% and 98% yet in South Africa the overall survival was calculated to be a mere 52.1%.

I am ANGRY that here at the Little Fighters Cancer Trust, we are not strangers to death from Childhood Cancer… we see it too often every year!

“Child loss is not an event;
It is an indescribable journey of survival”
~ Author Unknown ~

Read the rest of this entry

✨Thankful Thursday✨


The Little Fighters Cancer Trust functions with a tiny full-time team of 4 and works Nationally with the help of various Volunteers, Ambassadors, Representatives, and some wonderful Corporates too, without whom we could literally not function and do everything that we do.

These are the people who work in the background and about whom most of you do not know, or if you do even know that they exist, have absolutely no idea of exactly how integral they are to the continued existence and functioning of LFCT ~ These are the individuals that are the backbone of an organisation like ours…

We think that it is time that we change this fact, so we will be running a series of articles over the next little while that highlights these integral members of Team LFCT.

“A kind gesture can reach a wound
That only compassion can heal.
~ Steve Maraboli ~

 
Read the rest of this entry

My Name is Chuma

a blog from a Cape Town inner city artist

The Average South African

Food // Travel // Lifestyle

You Are The Cure

Campaign for children with Leukaemia

Knitting Rays of Hope

Spreading Hope...a hat at a time.

lovehopeandcourage

Inspired by ordinary people doing extraordinary things

Surviving The Bubble

Jamie Hutchings, Public speaker, leukemia survivor and depression fighter

beingmommie.com

Sharing my learnings of being a mother

Art of Social Work

Kristina Sargent

fonzandcancer blogging to encourage.

Sharing my journey with you.

%d bloggers like this: