Blog Archives

✨Foodie Friday ✨ Quick Meals & Snacks


Having a Child with Cancer in the house means that you are generally stressed and fatigued to the max! This also means that you do not have a lot of time for normal household duties, including cooking elaborate meals.

Added to this, a Child with Cancer very often either does not have an appetite or cannot eat certain foods due to their treatment, mouth sores, taste changes, lack of appetite and various other reasons, so what to do?

Nutrition is really important for a Child with Cancer as they need all the strength they can muster to fight off the monster that is cancer. This means that even if it is difficult to eat o they don’t have much of an appetite, they need nutrition to build up their immune systems.

Today we bring you some easy, quick and minimal-ingredient recipes that we are sure your child will enjoy (you might just enjoy them too, and remember is is just as important to keep your strength up!)

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Why is Childhood Cancer not a Priority in South Africa?


While Childhood Cancer is “relatively rare” with an incident rate of around 1 in 600, or 150 patients per million in South Africa, too many children with Cancer are dying needlessly because cancer, including Childhood Cancer, is not a priority in South Africa.

The cure rate for Childhood Cancer in high income countries is around 80% but childhood cancer survival rates in low-income countries may be as low as 10%.

This is extremely disturbing when one factors in that out of the 250 000 children diagnosed worldwide with cancer every year, 80% live in low and middle-income countries and 90% of childhood cancer deaths occur in low and middle-income countries.

This is partially due to a lack of awareness of Childhood Cancer which leads to late diagnosis, and partially due to many Childhood Cancer patients falling through the cracks when it comes to support services, which are sorely lacking from government.

 

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Cancer Caregiver Stress, Depression & Burnout


Being a caregiver for a person with cancer takes its toll on one’s health, and even more so when the person with cancer is your child.

Caregivers of Children with Cancer (usually the mother) are faced with far more stress, as they usually have to give up their job, spend endless hours at their child’s bedside in the hospital – sometimes for weeks or even months at a time, make endless trips to doctors, clinics and hospitals, and still try to be there for the rest of the family. Childhood Cancer unfortunately often ends in divorce, which places even more of a burden on the mother and the stress becomes far worse and can often turn into depression or burnout.

While it is natural to want to stay by your sick child’s side and meet the needs of their siblings and other family members – all at once, this is a virtually impossible task, and unless you give both your mind and your body a break once in a while, you could well end up with caregiver-burnout!

When one continuously cares for others while under tremendous stress, one can begin to feel that you’re in over your head and have little control over the situation – this can cause the stress to begin taking a toll on your health, relationships, and state of mind—eventually leading to burnout.

When you are burned out, it’s tough to do anything, let alone look after your ill child, which is  why taking care of yourself is not a luxury; it is a necessity! There are plenty of things you can do to rein in the stress of caregiving and regain a sense of balance, joy, and hope in your life.

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Stopping Neuroblastoma’s Blood Supply in its Tracks


Researchers have discovered the mechanism by which a modified natural compound disrupts the formation of tumours’ blood vessel networks in Childhood Cancer Neuroblastoma.

Neuroblastoma occurs when malignant cancer cells form in the specialised nerve cells of the sympathetic nervous involved in the development of the nervous system and other tissues.

Neuroblastoma most commonly occurs in one of the adrenal glands situated in the tummy or in the chest, neck, abdomen, pelvis or the nerve tissue that runs alongside the spinal cord. The adrenal glands are specialised glands that release hormones that help the body respond to stress and maintain blood pressure.

The international study, led by scientists at Children’s Cancer Institute and UNSW, is published in Scientific Reports and paves the way for less toxic treatments for Neuroblastoma, a Childhood Cancer with an average age of diagnosis of just one to two years old.

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HIV & Cancer Fields Collaborate For a Cure


Revolutions in cancer treatment are being tested in HIV in the hopes it will bring the world closer to a cure.

The first-ever anti-HIV drug, AZT, was initially developed to fight cancer but was abandoned in preliminary testing. This breakthrough drug saved lives and offered hope to people with AIDS. Over two decades later, the fields of oncology and HIV are collaborating again in the search for a functional cure for AIDS.

Why HIV cure and cancer?” asked Nobel Laureate Professor Françoise Barré-Sinoussi at a meeting in Paris last month. Renowned for co-discovering the HI virus in 1983, she said that the two had more in common that one would expect.

At a forum held shortly before the 9th International AIDS Society (IAS) Conference on HIV Science in late July Barré-Sinoussi said a collaboration between the two fields held promise towards finding a more sustainable solution to the current option for people living with HIV: daily treatment for life.

Well we know, first of all, some people on long-term treatment develop cancer,” she explained. Secondly, she said that over the past five years there is “more and more data” showing similarities between tumour cells and those latently infected with HIV.

When a person’s antiretroviral treatment (ART) is working to suppress the amount of virus in the blood to below detectable levels (an undetectable viral load) a number of HIV-infected cells persist. These cells, latently infected cells, stop infecting other cells with HIV but they reactivate when a person stops taking ART. A group of latently infected cells is called an HIV reservoir – and it is this that scientists are trying to locate and destroy in the hopes of finding a cure.

 

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✨Foodie Friday ✨Winter Warmers


Hola, Little Fighter Friends & Supporters – it is Friday again and we have survived the week, and what a week it was again in South Africa.

Time to forget about work and politics and to get some well-deserved rest and relaxation and re-energise ourselves for next week.

Winter is upon us and it is set to be a cold weekend in the Western Cape with snowfalls on the mountain peaks so some nice winter warmers are called for – the kind of food that “sticks to one’s bones” as our parents/grandparents would say….

We hope that you enjoy these recipes that we publish every week and look forward to some feedback as to whether you have tried them or not, whether your Child with Cancer enjoyed them, and also whether there are any recipes that you would like us to publish.

 

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Dr Charles Keller’s New hope for Rare Children’s Cancers


While many types of cancers have had improved survival outcomes over recent years due to new drugs and other clinical innovations, there are certain cancers that have not progressed appreciably in their survival rates or in developing new methodologies and drug protocols for decades.

Unfortunately, these cancers primarily affect children and young adults. Since the number of patients diagnosed with these deadly diseases annually is small compared to other types of cancers such as breast, prostate and colon cancer, they are treated as “orphan” diseases which translate into less emphasis by the drug companies and medical establishment in finding treatments and cures for these forms of cancer.

It is therefore up to dedicated researchers and grassroots support groups to “pick up the slack” and help those children afflicted with these deadly diseases by finding new drug protocols and techniques to stop the cancers from metastasising at worst or to stop the cancer cells from developing at best.

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U.S. Senate Passes Bill to Improve Cancer Drugs for Children


Up until now, drug companies have been free to decide whether to pursue treatments for paediatric cancers as part of their work on adult cancers or not, and this has led to a minimal amount of new drugs specifically for paediatric cancers being developed.

An estimated 2,000 children die of cancer annually, and the overall incidence of childhood cancer has been slowly increasing since 1975 – there has been a 13% rise in Childhood Cancer in the past 20 years alone.

Despite significant advances against certain pediatric cancers, including Acute Lymphoblastic Leukemia, there are still some types of cancer for which there are few or no effective treatments.

The truth is that new drug development in pediatric cancer is extremely slow, often lagging way behind adult treatments, and few compounds are designed specifically for children.

The sad truth is that Childhood cancers make up less than 1% of all cancers diagnosed each year, and that is is not much of a market for drug makers, who rack up an estimated $1.4 billion in out-of-pocket costs while bringing a novel drug to market.

They won’t have much choice going forward!!

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✨Foodie Friday ✨ Healthy Day’s Menu


Having a Child with Cancer in the home is really difficult, as the emotional, financial and psychological stress on everyone in the family is HUGE!

We know that  you as a parent are doing your best to help your Child with Cancer cope with fighting this devastating disease, spending hours at their bedside both at home and in the hospital, still trying to look after the rest of the family, and so much more, and that this takes everything you have.

We realise that trying to cook healthy meals is really difficult under the circumstances, especially when it is difficult for your Child with Cancer to eat, but good nutrition is paramount under the circumstances, which is why we try to make it easier by supplying you with easy, nutritious, cancer-fighting recipes.

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Understanding the Impact of Childhood Cancer Rates across Sub-Saharan Africa


Collated Childhood cancer statistics in sub Saharan Africa have been published for the first time as a monograph in the peer reviewed journal ecancermedicalscience, allowing researchers and policymakers a critical new insight into the impact of paediatric cancer across this region.

On the African continent, only South Africa operates a childhood cancer registry on the national level.

This new study brings together data from 16 of the smaller localised registers, which, as members of the African Cancer Registry Network (AFCRN), have been evaluated as achieving adequate coverage of their target population. The study has allowed for the collection of this scattered knowledge for the first time and presents it in an accessible format.

The cancers are classified according to the third revision of the International Classification of Childhood Cancer (ICCC-3) and recorded rates in Africa are compared with those in childhood populations in the UK, France, and the USA.

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✨Foodie Friday ✨Antioxidant-Rich Recipes


Free radicals are highly reactive chemicals that have the potential to harm cells. Free radicals are formed naturally in the body and play an important role in many normal cellular processes.

At high concentrations, however, free radicals can be hazardous to the body and damage all major components of cells, including DNA, proteins, and cell membranes. The damage to cells caused by free radicals, especially the damage to DNA, may play a role in the development of cancer and other health conditions.

Antioxidants are chemicals that interact with and neutralise free radicals, thus preventing them from causing damage. The body makes some of the antioxidants it uses to neutralise free radicals, but it also relies on external sources, primarily the diet, to obtain the rest of the antioxidants it needs. Fruits, vegetables, and grains are rich sources of dietary antioxidants.

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Can Antioxidant Supplements Prevent Cancer?


Antioxidants are substances that can help protect cells from damage caused by free radicals, or unstable molecules. That damage, called “oxidative stress,” is linked to the kind of damage in DNA mutations that can contribute to the risk of certain cancers, as well as diabetes, Alzheimer’s disease, and Parkinson’s disease.

In most cases, you can find all the antioxidants you need in a healthy, plant-based diet.

To date, nine randomised controlled clinical trials of dietary antioxidant supplements for cancer prevention have been conducted worldwide to study the effects of antioxidant supplements and cancer. The different studies reached varying conclusions about the efficacy and safety of taking antioxidant supplements to help prevent cancer or taking them during cancer treatment.

Some studies have shown that taking antioxidant supplements – such as vitamins A, C, E, folic acid, and beta-carotene – might help reduce the risk for certain diseases related to oxidative stress, including cancer.

Additional large randomized controlled trials are needed to provide clear scientific evidence about the potential benefits or harms of taking antioxidant supplements during cancer treatment,” the National Cancer Institute (NCI), reports.

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Graft-Versus-Host Disease


Some individuals being treated for certain cancers may undergo a Stem Cell Transplant along with Chemotherapy or Radiation Therapy. In Stem Cell Transplantation, healthy stem cells are taken either from themselves or a donor.

An allogeneic transplant is a procedure which involves using blood-forming stem cells (cells from which all blood cells develop) from a genetically similar, but not identical, cancer-free donor who matches the recipient’s tissue type. Most commonly, donors are a close relative, such as a sibling, but could also be an unrelated donor.

Using a donor for stem cell transplants offers what is called a graft-versus-cancer effect, in which the donor’s stem cells (graft) may attack any cancer cells found in the recipient (host).

Unfortunately, however, a stem cell transplant can also cause a condition called graft-versus-host-disease (GVHD).

GVHD is a serious and potentially life-threatening condition in which the donor cells attack the recipient’s healthy cells, causing a range of medical problems.

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Our New Office & Pre-Loved Charity Shoppe


I was unfortunately unable to go through to Paarl in the week of the 15th to help with the massive job of packing and moving premises as I was indisposed – thankfully the Little Fighters Trust is fortunate enough to have some wonderful supporters that arrived in spades to help.

Last Friday I went through for a meeting and I was astounded at how much had already been sorted out and how great the new premises looked. I really have to take my hat off to all the helpers, but most of all to Team LFCT – all 3 of the ladies who run the office and the shop – the place looks STUNNING!!!!

While a paint job on the outside is called for, that will have to wait until their is time and the funds for the paint. The signage will be put up this week and I know Mandie will post pics of that, but in the meantime here are some photos I took after our meeting.

Please click on the photos to go to gallery view for larger photos and captions.

 

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✨Foodie Friday ✨ Affordable, Nutritional Winter Warmers


Hola, Peeps! It is winter and the mountains are covered with snow making it absolutely f…f..f..frreeeeezing cold.

While we support our Children with Cancer and their Families by supplying them with warm blankets, winter clothing and food where possible, we understand that eating well is vital in the fight against cancer.

It is still difficult for most of these families to feed their child with cancer nutritional food that will warm them and build up their immune system due to financial as well as time-constraints, so here are some recipes to help make it a bit easier.

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