Blog Archives

A Happy & Blessed Father’s Day to ALL Fathers!


A good father makes all the difference in a child’s life. He’s a pillar of strength, support and discipline. His work is endless and, oftentimes, thankless.

The father of a Child with Cancer has an even harder job because he must continually stay strong for his child, even when they are in so much pain that it makes him want to cry.

The vulnerability they experience is stupefying and causes self-doubt, general worry, and frustration with the medical care they receive.

The father of a Child with Cancer rises to the challenge, whether holding a vomit bucket while their child empties their insides, squeezing into a tiny bed with their child overnight in the hospital, or delivering countless meds through syringes.

Even when at work, there is no magical “off switch” to shut off the immense stress and worry that onco-dads feel about their family. “It’s hard to focus, especially after a night where you rushed your child to the hospital with a seizure.”

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Celebrating Heini – Brain Cancer


heini-sept-16-1September is International Childhood Cancer Awareness Month and once again the Little Fighters Cancer Trust is hard at work sharing everything we can regarding Childhood Cancer and trying to raise Childhood Cancer Awareness by sharing information and Personal Stories with you.

Today we are once again sharing the story of Little Heinrich van Straaten (Heini). We have shared his story before, but we feel that we need to share it again as this Little Fighter is still fighting every day of his life as a result of brain cancer.

The Little Fighters Cancer Trust would like to sincerely thank all our Onco Parents that have shared with us in the hope that their stories can help other parents who have children that are ill but are not sure what the problem is, and to raise Childhood Cancer Awareness so that earlier diagnosis can be done.

We will continue to publish more poems and stories by Onco Parents throughout this month as we work hard to bring Childhood Cancer to the fore and spread Childhood Cancer Awareness – all in the effort to inform and educate other parents to the ravages of Childhood Cancer and to remind everyone that

The Best Defence against Childhood Cancer is Awareness and Early Diagnosis

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Nurse Agrees to Become 5-Year-Old Leukaemia Patient’s ‘Hospital Wife’


Iron GideonGideon Robinson from San Diego is a five-year-old California boy diagnosed with Acute Lymphoblastic Leukemia, but he is not letting this get him down, and has earned the nickname Iron Gideon while in hospital.

AJ Robinson, Gideon’s father,  describes his son as a typical high energy, playful, somewhat mischievous 5 year old that had been in good health until he developed chest pains with swelling and redness in May of 2015. X-rays found no problems so life went on; a month later the pains returned and they had the same result.They tested for leukemia and the test came back negative

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Celebrating the Life of Austin


im freeI sat down at my computer to write an “In Memoriam” for Austin, and I immediately realised that I could not do it!

Although I did not know Austin personally, I, like every other Team LFCT member and many others, have followed his progress narrowly since the day he became a Little Fighter, and the one thing that struck me was the positivity and grace with which Austin handled his cancer.

I was looking back through his FaceBook Page earlier and could not help but smile…

Austin was a charmer; his positivity literally shone out of the page on every photo… A Charming, Gentle, Smiling, Brave Warrior.

Every post on his page by his family is positive, even if the news was not that great, and it is because of this that I ask you all to join us not in mourning his death but in celebrating this gentle young warrior’s life… Read the rest of this entry

The Weekend the Tears Would not Stop


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This past weekend has yet again been a weekend when the tears did not stop amongst the Little Fighters Cancer Trust team.

It is always heartbreaking to lose a Little Fighter, but to lose two in two days is devastating…

This weekend two of our Little Fighters lost their battle against Cancer.

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The Littlest Soldiers


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The Littlest Soldiers

The medals on our chests
Are portacaths for meds
Helmets won’t stay on
Cause no hair is on our heads.

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‘Truly Brave’


Good Morning Little Fighters Cancer Trust Community!

This morning we would like to send out this dedication to all our Little Fighters and their Families

 

Sara Bareilles and Cyndi Lauper teamed up to create this epically powerful tune based on the songs “True Colors” and “Brave” for these brave children who have to spend every day in the hospital. The superstars mashed up two of their popular songs to form one huge heartwarming melody.

 

YOU are all ‘Truly Brave’ and Team Little Fighters Cancer Trust salutes you!

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World of Hope


Take a minute and ask yourself “how do I cope with really bad news or tough times?”

As adults, we might talk to our friends, go on a shopping spree, eat more than we should or even run away from it completely.

But kids are different…

Kids with cancer in “The World of Hope” – Pediatric cancer care at Dayton Children’s Hospital Published on Nov 27, 2012

Some very special children at Dayton Children’s give us a special glimpse into the world of a child fighting cancer and how imagination and joy help them  through their treatments. As they take you on a journey through their “World of Hope”, these courageous fighters show us the importance of imagination, play, joy and hope for children–even more so in the face of fighting scary things like cancer. In their World of Hope, you will see courageous kids magically transform into cowboys chasing bandits, princesses with spell potions and astronauts heading into space for healing.

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Stronger


Good Morning, Little Fighters! Here is something that will hopefully lift your spirits and remind you that you are all Warriors and you are all incredibly STRONG!

Cover version of “Stronger (What Doesn’t Kill You)” by Kelly Clarkson, performed by Megan Kowalewski and fellow warriors and nurses

Here are the lyrics so you can sing along at the tops of your voices…

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Childhood Cancer ~ A General Guide for Parents Part IV: Questions Your Child May Ask


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In Part 1 of this series we explained that this series of articles is not meant to be medical advice, but a guide that may help you as a parent of a newly diagnosed child with cancer cope just a bit better. Information is knowledge, and never more so than when you are dealing with childhood cancer!

These articles are meant to help you be the key part of your child’s treatment that you will need to be. Take what works for you according to your situation and your child’s temperament, personality, fears, strengths, and how they deal with adversity, and leave what does not pertain to your situation.

Part 4 will deal with Questions Your Child May Ask when they are diagnosed with cancer, regarding how they got cancer, what tests the doctors may conduct, and what treatment they may have to undergo.

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Childhood Cancer ~ A General Guide for Parents Part III: Talking to Your Child about Their Cancer


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As previously explained, this series of articles is not meant to be medical advice, but a guide that may help you as a parent of a newly-diagnosed child with cancer cope just a bit better. Information is knowledge, and never more so than when you are dealing with childhood cancer!

These articles are meant to help you be the key part of your child’s treatment that you will need to be. Take what works for you according to your situation and your child’s temperament, personality, fears, strengths, and how they deal with adversity, and leave what does not pertain to your situation.

Part 3 will deal with talking to your child about their cancer; should you or shouldn’t you; when should you; who should tell your child, and how much you should tell your child.

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Fly High Erin Griffin ~Forever 14~


It was with great sadness that Little Fighters Cancer Trust heard the news that Childhood Cancer Campaigner Erin Griffin died at the Children’s Hospital in Adelaide with her parents, brother and grandmother by her side.

In 2013, Erin received a Children’s Week Award for her advocacy work in raising childhood cancer awareness. Erin was born in Scotland and moved to Australia when she was six. She was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an incurable brain cancer, on February 18, 2012.

Erin died on September 1, less than an hour after Childhood Cancer Awareness Month began.

On Facebook, a spokesman for The Truth 365 documentary about childhood cancer said: “Her mum Amanda says she knew that Erin was holding on until September 1 because her mission in life was to spread international awareness of childhood cancer,” he said.

“Amanda said that Erin died peacefully with her family by her side. Her tumour will go to DIPG research in Sydney.”

Erin started a petition in November 2013 to give to the Australian Senate calling for paediatric cancer research to be made a national priority and for the development of a national plan for the advancement of childhood cancer research.

She met with Congress in the US on the issue and delivered a speech on childhood cancer awareness at Curefest in Washington DC, where the cancer community met with leading paediatric oncologists and US government leaders every year.

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A Happy & Blessed Father’s Day to ALL the Fathers out there!


Happy Father’s Day Party Graphic

God took the strength of a mountain,
The majesty of a tree,
The warmth of a summer sun,
The calm of a quiet sea,
The generous soul of nature,
The comforting arm of night,
The wisdom of the ages,
The power of the eagle’s flight,
The joy of a morning in spring,
The faith of a mustard seed,
The patience of eternity,
The depth of a family need,
Then God combined these qualities,
And then there was nothing more to add,
He knew His masterpiece was complete,
And so, He called it – Dad.

Heini’s Story


Heini going for his brain op

Heini going for his brain op

Little Heini’s Story

I want to tell Heini’s story in the hope that those that have not yet been touched by cancer will understand how a mother feels, what she goes through, and what cancer is! I am posting a photo of Heini’s second big brain operation in 2012.

Little (Heini) Heinrich van Straaten went to school like any other little boy when mom Lize had to go to work. He did not play with his friends much, just stood around with his hands in his pockets.

Heini was 3 years old when he started bumping into things in October 2012; he was continuously nauseous and told his mother he had a headache. Everyone thought it was not the truth, until it started getting worse. Mom took him to the hospital on the 12th November 2012. Read the rest of this entry

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