It was with great sadness that Little Fighters Cancer Trust heard the news that Childhood Cancer Campaigner Erin Griffin died at the Children’s Hospital in Adelaide with her parents, brother and grandmother by her side.
In 2013, Erin received a Children’s Week Award for her advocacy work in raising childhood cancer awareness. Erin was born in Scotland and moved to Australia when she was six. She was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an incurable brain cancer, on February 18, 2012.
Erin died on September 1, less than an hour after Childhood Cancer Awareness Month began.
On Facebook, a spokesman for The Truth 365 documentary about childhood cancer said: “Her mum Amanda says she knew that Erin was holding on until September 1 because her mission in life was to spread international awareness of childhood cancer,” he said.
“Amanda said that Erin died peacefully with her family by her side. Her tumour will go to DIPG research in Sydney.”
Erin started a petition in November 2013 to give to the Australian Senate calling for paediatric cancer research to be made a national priority and for the development of a national plan for the advancement of childhood cancer research.
She met with Congress in the US on the issue and delivered a speech on childhood cancer awareness at Curefest in Washington DC, where the cancer community met with leading paediatric oncologists and US government leaders every year.
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