I am sitting here typing this with tears streaming down my face because this is the type of post we hate doing. It never gets easier and it breaks our hearts every time we have to do one.
It is with overwhelming sadness and aching hearts that today we have to share with you the heartbreaking news that Little Fighter Camy earned her Angel Wings approximately 30 minutes ago.
Camy was diagnosed with a very aggressive Desmoplastic Small Round Abdominal Tumour in August 2016, and although she fought hard, it has not been an easy journey. Chemotherapy did not help and this little soul was very ill and in pain
R.I.P. Little Fighter Cameron September ^Forever 10^
Fly High and Free Dearest Camy – No more Pain
Our Deepest Condolences and Love go out to Daddy Michael, Mommy Cathryn, Brothers Miquel & McNeil, sisters Sasha Lee and Cassidy as well as the rest of the Family.
Forever in Our Hearts
Before we go any further though, please join the Little Fighters Cancer Trust in supporting Shanaya and her Family by downloading the pic on the left and using it as your Profile pic for today and the next few days to show them how much support there is for our little Butterfly Princess.
For those who may not have been following Shanaya’s journey with cancer, histology results on 13th September, 2017 confirmed that she had Stage 4 Ewing Sarcoma, a rare bone cancer. The bottom half of her left humerus had been eaten away; the top part of the left humerus was fractured and there were metastasis in both her lungs.
Shanaya has since undergone intense chemotherapy treatment cycles over the past 6 months, but unfortunately her arm was too damaged and could not be saved and the decision to amputate at the shoulder was made.
And so Shanaya’s Journey with Ewing Sarcoma entered a new phase in 2018.
This would include 2 more intensive cycles of chemo with all the bells and whistles that go with it, major surgery or surgeries, and the possibility of maintenance chemotherapy – but at least the end is in sight…
Mommy and Daddy decided that because our Supergirl Shanaya the First had already slayed the first 4 intensive cycles of chemo and all its side effects like a true warrior princess, she could draw up a “Dream List” of things that she would really like to do, and they would try their best to make them come true.
January started off early with hospital admission number 10 since Shanaya first fell ill in April 2017 – in that short period of ten months, this poor little princess had undergone:
- 10 hospital admissions;
- 8 times in theater;
- Far too many scans, blood tests and doctors appointments;
- 5 months of misdiagnosis and ;
- 5 months of Chemotherapy
And so today we continue with more of Shanaya’s Fight against Ewing Sarcoma…
Ewing sarcoma is the second most common bone cancer in children. It occurs most frequently in the long bones of the legs or arms, the pelvis, chest wall, spine and the skull, but can also begin in the soft tissues and not involve bone.
This disease most often occurs in adolescents, with nearly half of cases arising between the ages of 10 and 20. Ewing sarcoma is somewhat more common in males than in females.
During December 2017, Shanaya’s blood counts took a nosedive, and with a blood platelet count of a mere 18, she was admitted for her first blood transfusion.
Fortunately she was able to go home the next day, so was ecstatic as she hates to be away from her brother Unma with whom she is really close and who she misses terribly when she is in hospital.
Young Shanaya took to her battle with cancer as she does everything else – with a determined smile, even when she was really not feeling well.
Mommy was there with her in the hospital every step of the way, and because Shanaya is Daddy’s Girl, so was her daddy Shane whenever he could be.
Unfortunately, due to the chemotherapy treatments, Shanaya lost her beautiful long hair, but she was not fazed….
“No hair not going to stop me from being the diva princess I am. I am the one ‘n only Shanaya the First!”
So today we continue with Shanaya’s story as promised…
Having no luck in resolving the problem of the swelling and pain in Shanaya’s arm, her worried parents eventually resorted to sending the specialist a photo of her arm on the 5th September, as it was not looking at all normal.
The specialist referred Shanaya to yet another orthopaedic doctor, who ordered more x-rays and advised Shane and Lee-Anne that it looked to him like Shanaya had a bone tumour but told them that he would need to do a biopsy with full histology to confirm it.
On the 7th September, little Shanaya underwent the biopsy, an MRI, a CT-Scan, more X-rays, and various blood tests.
The doctor got the histology results on 13th September, 2017 and they confirmed that she had Stage 4 Ewing Sarcoma, a rare bone cancer. The bottom half of her left humerus had been eaten away; the top part of the left humerus was fractured and there were metastasis in both her lungs.
Shanaya was then referred to the Oncology unit at which she is still being treated.
Most of you, though, do not know the full story, and because it is so important to share the stories of our Little Fighters so that others may learn, and because Shanaya is facing overcoming another massive hurdle very soon, we will be sharing her story and some insights into fighting this Childhood Cancer over the next two weeks….
Thanks to Shanaya’s Family for allowing the Little Fighters Cancer Trust to publish her story in order to create Childhood Cancer Awareness and perhaps offer some insight to other parents who are going through the same battle.
Shanaya was born on the 1st November 2013 to parents Shane and Lee-Anne, and soon melted everyone’s hearts… she was a typical little princess and had a completely uneventful childhood as far as illnesses go, until one night in April 2017…
What a tale of an all-encompassing love that is somewhat Romeo & Juliet-esque in that it will also be so short-lived – a tale of True Love shared with you on this Valentine’s Day.
For the past year and a half, 19-year-old Dustin Snyder has been battling a rare form of cancer called synovial sarcoma — undergoing treatments to remove the tumors, only to watch them return and ravage his body.
One day before Dustin’s 18th birthday, he was diagnosed with a rare form of cancer. Doctors discovered the cancer in his left lung, which is rare.
Synovial sarcoma is a slow-growing cancer that typically attacks the soft tissues near large joints and, in some cases, is initially misdiagnosed as arthritis or bursitis, according to the Mayo Clinic. Sometimes, however, it can develop in the kidneys and lungs.
“The goal is to remove the cancer and a margin of healthy tissue around it,” according to the clinic. “This can sometimes mean the removal of an entire muscle or muscle group, or even amputation.”
Snyder’s mother said he underwent chemotherapy and radiation “hoping to save the lung.” But several months later, doctors had to remove it.
It is once again that time of the year when we ask you to go barefoot for a day so that our Children with Cancer do not have to!
Barefoot for a Day is an Annual Project that LFCT started in 2013, and every year we ask you to join us in collecting/donating shoes for our Little Fighters in hospital, at home and in Places of Safety.
This year we are combining our Barefoot for a Day project with our Snug as a Bug Project into one big project this year. That way we can make our deliveries to the hospital wards, day clinics and to our Little Fighters and their siblings at home before the chill of winter sets in, thereby avoiding any between-season or change-of-season sniffles, which are very dangerous for Children with Cancer with their impaired immune systems.
WE URGENTLY Need YOU To Donate/Collect NEW Shoes & NEW Warm Winter Clothing for our Little Fighters.
Get your Friends involved, get your Family involved, get your Work involved, get your School involved – just think how many people you know…. if only a few of them donate one item of clothing or one pair of shoes, or the financial equivalent, we will have MORE than enough for ALL our Little Fighters.
💞 SHARE THE LOVE 💞
Health care practitioners were surprised when they saw 10 cases of a very rare cancer in the New York City area. As it turned out, most of the patients weren’t originally from New York.
Vitreoretinal lymphoma is an extremely rare disease. So rare, in fact, that when 10 cases were found over a four-year span near New York City, physicians began to think that there must be some connection between the cases.
Sanford Kempin, M.D., assistant professor at Mount Sinai Health System, and his colleagues began to dig in a bit deeper with the help of Roxana Moslehi, Ph.D., associate professor in the University at Albany State University of New York, School of Public Health.
Sure enough, it was found that six of the 10 patients had a peculiar common denominator: they all lived near the Chernobyl nuclear power facility during the 1986 radioactive disaster.