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Child Cancer Diagnosis – What I Wish I Knew


What do you do when you receive the shocking and unwelcome news that your child has cancer? What do you need? How do you handle it?

What do you do or say when the child of a friend has been diagnosed with cancer? How do you support them best?

What do you say and what should you never, never, EVER say to the parent of a child with cancer?

It is difficult to know what to say even to an adult who has been diagnosed with cancer, let alone to a child or the parent of a child with cancer…

The following was written by the mother of a child with cancer to let everyone know how she felt and what is cool and what is not cool to say to someone whose child has cancer… we hope that it will be of some help to those who have just heard that a friend or family member’s child has just been diagnosed with cancer and the family is about to face the battle of their lives….

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❣️URGENT❣️ Help Make a Dying Boy’s Wish Come True 🙏


Today we put out a very urgent plea for help to make a wish come true for young Aleem, a 5-year-old boy with terminal cancer.

Little Fighter Aleem Bowman was born on 25 July 2012. When he was admitted to Red Cross Children’s Hospital on 15 September 2016, he was diagnosed with Stage IV Neuroblastoma.

Aleem went through RCCH High Risk Neuroblastoma Protocol until April 2017, which included tests, scans, blood work, regular transfusions, hospitalisation, intensive chemotherapy and other treatments, and loads more.

Mommy Kaneez, a single mother, has had to handle a lot, and unfortunately this became even worse when the doctors informed her recently that there are simply no more treatment options for Aleem. He was on maintenance chemo for a short while, which was given purely to extend the time he has with his family, but even the maintenance chemo has now been stopped, as it serves no purpose anymore, and could now be harmful.

Aleem lives with his mommy (who had to give up her job to look after Aleem) and his older sister Kami at Kaneez’s elderly Parents’ home. Things have been very difficult for this family and The Little Fighters Cancer Trust has been offering whatever assistance we could such as food, clothing, bedding, and other practical needs since 7 October 2016.

Aleem was friends with another Little Fighter who lost his Fight last year, but who, before he died got his greatest wish and was able to visit Durban and have a very special interaction with the dolphins at Ushaka Marine World. Aleem saw the photographs, and has been talking about the dolphins for months!

Last week LFCT received a letter from Aleem’s Oncologist, positive about this travel and clearing him medically for the trip!

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Happy Mother’s Day


Motherhood is a choice you make everyday, to put someone else’s happiness and well-being ahead of your own, to teach the hard lessons, to do the right thing even when you’re not sure what the right thing is…and to forgive yourself, over and over again, for doing everything wrong.” ~ Donna Ball, At Home on Ladybug Farm

Please Support Our Mother’s Day Project


Mother’s Day is a celebration honouring the mother of the family, as well as motherhood, maternal bonds, and the influence of mothers in society.

All mothers deserve a day to be honoured, and no mothers deserve to be honoured more than mothers of Children with Cancer. These mothers live under tremendous stress for months, sometimes years while their child is engaged in a battle for their life.

Put yourself in the shoes of one of these mothers ~ your child has been given what amounts to a death sentence before they have even had a chance to really live…

Add to this the confusion and uncertainty; the many visits to doctors, clinics, and hospitals; the myriad of tests and treatments; the fear that their child may die; the financial strain and the strain of trying to give your other children what they need too…

Now think about the many hours, weeks and often months that these mothers spend in hospital wards at the bedside of their child, praying, crying while they sleep and trying to show a brave smiling face when they are awake…

Birthdays, Christmas, Easter, Anniversaries, Kwanza, Pesach… none of them matter to a mother if her child is ill… she will maintain a vigil at their bedside, often to the detriment of her own health…

 

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A Reflection of You


supporting_smSeeing that today is Friday, we are once again going to take a break from sharing the story of Ryan’s Fight against Cancer to bring you another heart-wrenching poem written by his mother, Michelle.

We will be continuing with more of Ryan’s Story on Monday and later in the month we will bring you the story of another Little Fighter’s fight against cancer, so please come back regularly to see what all we have to share with you.

Remember, these “Onco Parents” and the Little Fighters Cancer Trust are sharing these stories, poems etc. with you throughout the month of September in order to create Childhood Cancer Awareness, so please share them far and wide with all your friends, contacts etc.

 Tea_bowl_fixed_in_the_Kintsugi_method

When the Japanese mend broken objects,
They aggrandise the damage by
Filling the cracks with gold;
They believe that when something’s
Suffered damage and has a history
It becomes more beautiful.
~Barbara Bloom ~

 

SUPPORT  –  ADVOCATE  –  CURE

 

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Angel in Heaven


awarenessSeptember is International Childhood Cancer Awareness Month and once again the Little Fighters Cancer Trust is hard at work sharing everything we can regarding Childhood Cancer and trying to raise Childhood Cancer Awareness by sharing information and Personal Stories with you.

Today we are taking a bit of a break from telling Ryan’s Story to share with you a poem that his mother Michelle wrote.

Writing down how one feels is probably one of the best things that any parent of a Child with Cancer can do, as it is one way of getting all those emotions out that one just cannot always share with others.

We will be publishing more of these poems by Michelle throughout this month as we work hard to bring Childhood Cancer to the fore and spread Childhood Cancer Awareness – all in the effort to inform and educate other parents to the ravages of Childhood Cancer and to remind everyone that

The Best Defence against Childhood Cancer is Awareness and Early Diagnosis

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Mother’s Day 2016 Appeal


A Mother’s love is something that no one can explain,
It is made of deep devotion and of sacrifice and pain,
It is endless and unselfish and enduring come what may
For nothing can destroy it or take that love away
~ Helen Steiner Rice ~

 

Mother’s Day is a day on which mothers across the world are celebrated and honoured for the role that they play in our lives and in society, and in our eyes there are no mothers who deserve this honour and a little bit of spoiling more than the mothers of our Little Fighters.

The earliest history of Mother’s Day dates back to the ancient annual spring festival the Greeks dedicated to maternal goddesses. The Greeks used the occasion to honour Rhea, wife of Cronus and the mother of many deities of Greek mythology.

Ancient Romans, too, celebrated a spring festival, called Hilaria dedicated to Cybele, a mother goddess. It may be noted that ceremonies in honour of Cybele began some 250 years before Christ was born. The celebration made on the Ides of March by making offerings in the temple of Cybele lasted for three days and included parades, games and masquerades. The celebrations were notorious enough that followers of Cybele were banished from Rome.

Early Christians celebrated a Mother’s Day of sorts during the festival on the fourth Sunday of Lent in honor of the Virgin Mary, the Mother of Christ.

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Honouring All Little Fighter Mothers



Mothers-Day-CarlyMarie

Today Team Little Fighters Cancer Trust would like to reach out to all Mothers to wish them all Love, Light & Strength on this Mother’s Day.

A Child’s Angel

Once upon a time there was a child ready to be born.

One day he asked God: “They tell me you are sending me to earth tomorrow,

how am I going to live there being so small and helpless?”

GOD replied, “Among the many angels, I chose one for you.

She will be waiting for you and will take care of you.”

“But tell me, here in Heaven, I don’t do anything else but sing and smile,

that’s enough for me to be happy.”

“Your angel will sing for you and will also smile for you every day.

And you will feel your angel’s love and be happy.”

“And how am I going to be able to understand when people talk to me,

if I don’t know the language that men talk?”

“Your angel will tell you the most beautiful and sweet words you will ever hear,

and with much patience and care, your angel will teach you how to speak.”

“And what am I going to do when I want to talk to you?”

“Your angel will place your hands together and will teach you how to pray.”

“I’ve heard that on earth there are bad men. Who will protect me?”

“Your angel will defend you even if it means risking its life.”

“But I will always be sad because I will not see you anymore.”

“Your angel will always talk to you about me and will teach you

the way for you to come back to me, even though I will always be next to you.”

At that moment there was much peace in Heaven,

but voices from earth could already be heard.

And the child in a hurry asked softly: “Oh God, if I am about to leave now,

please tell me my angel’s name.”

“Your angel’s name is of no importance,

you will call your angel: ‘Mommy’.”

~ By Erma Bombeck ~

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Donate an emBRACING & emPOWERING Mother’s Day Gift


Embrace Project

Mother’s Day is usually a big deal for us, and, although we are doing thing very differently this year, it still is.

Usually we treat the mothers with gifts, flowers and a nice lunch, but too soon the flowers wilt, the meals have been eaten and the choccies too… and then it is back to the everyday chore of trying to work out how to get money for the essentials… this is emotionally, mentally and psychologically disempowering, and adds even more stress to a mother who is constantly living under the stress of helplessly watching her child fight cancer every day.

THIS Mother’s Day, we plan to start a truly amazing Gifting process to these Mommies, who often go without food, toiletries and sanitary products, simply because there is no money to keep the home going as well as for the Mommy to have everything she needs while sitting with her child at hospital as well.

We are launching our emBRACE Project!

The emBRACE Project is a job-creation and self-earning Project, which means that, even while sitting in hospital, caring for their Child with Cancer, these Mommies can still earn a small income.

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Remembering Austin ~ Week 4


Grieving-The-loss-Of-A-Child-Motivational-Love-Quotes

Today we once again share with you the writings of Austin‘s Mom, Ilse on his Facebook Page.

Losing a child is not natural; it is the absolute worst thing that can happen to any parent, and the heartache that follows is devastating. No parent is prepared for a child’s death, even if they have anticipated it during their child’s illness.

Parents are intimately involved in the daily lives of their children, and death changes every aspect of family life, leaving an enormous emptiness. In addition to grieving the loss of  their child, parents may find that they also grieve the loss of the hopes and dreams they had for their child, as well as the potential that will never be realised and the experiences they will never share. The pain of these losses will always be a part of  a parent who has lost a child.

Losing a child leaves a hole in a parent’s heart that will never heal; the death of a child is Out of Order – it has violated nature’s way… and can result in a variety of emotions.

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